Kyle Danikas from The Alicia Unleashed podcast needs Your Help

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“Hey guys, I need your help. I have never done anything like this before and I am a little nervous, but I think there are a lot  of good people out there that will help me if I ask.  I am participating in the Walk For Victory on June 11th on Team Zebra for EDS. Over a year ago I was diagnosed with Ehlers-Danlos Syndrome (EDS). Ehlers-Danlos syndrome is a group of connective tissue disorders.  The type I have, most people suffer from dislocations or partial dislocations of joints, which results in joint pain, muscle pain and nerve pain (all the pains really) among many other nasty symptoms. Any how, it can really be difficult to fake a smile some days when your knee cap wont stay on. You can read “my story” and donate by clicking the link below. This is one of those things where I can end up being pretty proud of something I did and the people who helped me get there.

The walk is put on by The Marfan Foundation. Marfan Syndrome is similar connective tissue disorder. ALL funds raised for Team Zebra will go DIRECTLY towards Ehlers-Danlos Syndrome (EDS) research.

Why Zebra? People with Ehlers-Danlos syndrome (EDS) often identify themselves as zebras. Medical students have been taught for decades that, “When you hear hoofbeats behind you, don’t expect to see a zebra.” In other words, look for the more common and usual, not the surprising, diagnosis.”

https://give.marfan.org/fundraise?fcid=962256

One comment

  • Very Brave of you to do this on Podcast and wishing you the best on the path ahead have fun in B-town..:-) Dave & Kim 🙂 Done! Remember the James Taylor song words always you got friends and family, community who care! GMG you did it again and Alicia and team well done!

    For all in Boston and world-wide stay strong!

    “You’ve got a Friend” By: James Taylor

    Like

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